Ocean at sundown
© Adrian Lyon—Gallery Stock
Jeg mødte først Stephanie på intensivafdelingen. Hun var kommet ind med udrykning - i en tilstand af chok, hendes blodtryk var næsten umåleligt. I de foregående måneder var mængden af kræftfyldte væsker øget omkring hendes lunger. Hun havde brugt det permanente dræningsrør i sin brystvæg mere hyppigt for at klare sin åndenød. Men undervejs i processen var hendes blodtryk blevet truende lavt. Hun var ubevidst, og mumlede usammenhængende. Hendes nyrer og lever fik ikke nok blod og var i færd med at dø. Vi arbejdede hurtigt, og vi var var heldige nok til at være i stand til at rehydrere hende før hendes organer blev permanent skadede. Langsomt vågnede hun op igen. Vi havde reddet hende.

Stephanie var en 60 år gammel hustru, mor og bedstemor. Hun elskede livet. Vinsmagning, havearbejde, at bruge tid med familien - dette holdt ikke op, da hun blev diagnosticeret. Da hun fandt ud af kræften havde bredt sig til lungerene og hjernen, hun tog en dyb vejrtrækning og gik tilbage i ringen for at kæmpe. Hun skrev sig op til mere kemoterapi. Hvis hun arbejde hårdt, tænkte hun at hun kunne overkomme kræften.

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I wanted to celebrate with Stephanie and her family - she was no longer in critical condition - but I couldn't. Our "fix" wasn't going to change the fact that her cancer would continue to worsen. And fast. More chemotherapy would not save this woman. I had to tell her the truth.

When I walked into the room, Stephanie's daughter Becky was giving her a massage. I thought of a manager preparing his boxer to return to the ring. "We're ready to get back in there and fight," Becky told me. "Bring on the chemotherapy." Stephanie looked tired, but nodded. I took a deep breath and sat on the side of the bed.

I explained that it was only a matter of time before Stephanie's organs failed again. The next time, she probably wouldn't be so lucky. The corners of Stephanie's mouth pointed down, like two arrows, and I wasn't sure if she was getting ready to cry or yell. "Please leave," Becky said.

I had done the right thing, but nonetheless I felt ashamed. I wasn't the doctor they had been hoping for. I wasn't their hero.

We all know we will die. But somehow none of us believes it. This is a serious obstacle to dying well.

To start to find a way to experience a better end, we need to reflect on our own deaths and begin the process of accepting our mortality. This may happen through meditation, writing or conversations. Of course we should have hope if illness strikes us, but hope for perpetual life is blind. As we age or grow ill, the goal may switch from hope for longer life to hope for more attainable goals like healing relationships, living pain-free and enjoying a glass of Cabernet.

Simultaneously, we must prepare for this final stage of life. We must consider our preferences and values and shared them with our loved ones. Stephanie cared about being at home, with her family. What is most important to you? What would be most important to your loved ones? One day you might be called on to represent them. This conversation should happen repeatedly over the years, through the various stages of life and changes in health.

We must all - doctor, nurse, patient and family - also remember that these decisions require the collaboration of a whole team. The doctor is indeed the expert on the disease, but the patient is the expert on the patient. If you feel that you are not being included in decision-making for yourself or a loved one, or you don't feel the team is communicating well, request a palliative care consultation, which brings communication expertise into the picture.

Two days later, I went upstairs to check on Stephanie and her family. I was no longer responsible for the case. Still, I worried that I had upset them, and I wanted to check in. I was dreading it.

But when I reached the room, there was Stephanie sitting in a wheelchair, smiling. She was going home that day. The family had had some time to absorb the news, and then they had changed the course of care. They had met with a hospice service. No more hospitals. No more chemotherapy.

Stephanie enjoyed the last two months of life with the support of hospice, her family and several bottles of good wine. Her funeral, which I attended, was replete with wonderful stories and not an ounce of regret. She died in my arms, Becky said, and it was as loving and peaceful a death as you could imagine.

Stephanie's last couple of months might have looked very different. Like many of my patients, she could have died attached to machines. She could have been isolated from her family instead of in a cozy bed in the middle of the living room. And rather than the taste of wine and crackers, she could have had breathing and feeding tubes filling her mouth.

I've seen so many patients, so many lives, so many deaths. Far too few have the opportunity to live the life they would choose all the way through to the end. I believe deaths like Stephanie's should be the rule, rather than the exception. And that is going to take some work from all of us - in the form of reflection, preparation and collaboration.

When it comes to death and dying, the answer is found in honest communication and human connection rather than technology and protocols. We've achieved amazing things in modern medicine. Our tools can serve to bring the dying back to life. But too often they take life away from the dying.